My Alzheimer's Journey
Part 153 - Finding Purpose
Anyone who has traveled the Alzheimer’s journey as a patient, caregiver, friend, or family member knows how bumpy the road can be. When the Duke Neurology team told me I had early-stage Alzheimer’s, they did not give me a road map for the journey I was starting.
The reason for the lack of a road map, is that everyone’s Alzheimer’s journey is unique.
The disease progresses differently for everyone. Support systems vary widely. Treatment options are patient specific. The financial impact is significant for all patients; yet, there is no blueprint or standard plan. Indirect illnesses range from depression to urinary tract infections, with no advance warning.
As I continue down the rocky road of Alzheimer’s, I have encountered a number of obstacles, potholes, and unexpected hazards. My journey also includes surprise encounters of generosity, compassionate care, and support from strangers. The most shocking aspect of my journey is the often erratic and irresponsible actions of the United States government. I keep thinking about the seven million Americans who suffer with Alzheimer’s. I bet the cost of the proposed Trump Arch would fund the research needed to find a cure for Alzheimer’s.
My greatest struggle is avoiding depression. There are days when I am physically exhausted, the body chills are endless, and I can’t remember the day of the week. That is when I question my purpose. I ask myself why the long goodbye has to be so damn long. Those are the dark days.
I miss going to work, being creative, building things, getting paid, and seeing the smiles of happy clients. Those activities are not allowed on my Alzheimer’s journey. Poor memory, inability to make sound decisions, frequent confusion, twitching hands, and lack of energy are not considered great skills in the construction industry.
I am learning how to repackage, reformat, and repurpose many of the skills I have.
To keep my entrepreneurial spirit alive, I have started a few small ventures with Linda as my partner, and Big Bit as my emotional support cat. My new purpose is Alzheimer’s advocacy. I hope my talents, skills, and experiences can be put to use to make a difference for those who come behind me on the Alzheimer’s journey.
To help me navigate the road ahead and beat back the depression that is always lurking in the shadows, I try to stay focused on the positive aspects of my life.
Speaking of positive, some wonderful things have happened since my last blog update:
Linda and I received a generous gift from an anonymous giver. I enjoy making my coffee with the state-of-the-art grinder/brewer. The Instant Pot will be used for the first time this weekend. If I can train the cats to make my coffee (and serve it to me in bed), I will be overwhelmingly happy.
I learned that I do not need cataract surgery. It always pays to get a second opinion.
Linda’s leg fracture is slowly healing. After a visit to the doctor yesterday, It seems that surgery is not needed. She still has a long road to full recovery, though.
Baring any last minute hiccups, our South Carolina home will be sold the first week of June. We are selling for much less than we hoped; but, we are happy to hand the keys to someone else.
Your support helps me navigate the numerous road hazards I encounter daily.
I am so grateful to have you alongside me on my Alzheimer’s journey.
Greg’s Alzheimer’s Research Report
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Go Fund Me (amounts greater than $25)
Buy Big Bit A Treat (small donations)
Amazon Wish List (things that Linda and Greg need)
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